Manila, Philippines - October 31, 2023 - Psoriasis Philippines (PsorPhil), the leading national advocacy and support group for individuals living with psoriatic diseases, has marked a historic moment with the launch of the GPP Network. This groundbreaking initiative focuses on individuals battling Generalized Pustular Psoriasis (GPP), an exceedingly rare and severe form of psoriasis that can be life-threatening.
What is GPP?
Generalized Pustular Psoriasis (GPP) is a rare and severe autoimmune inflammatory disorder, causing widespread, painful, and pus-filled blisters (pustules) on the skin, often surrounded by inflamed, red skin. Due to its potentially life-threatening nature and significant impact on well-being, early diagnosis, and appropriate treatment are critical.
Psorphil Patient App Launch: Living with psoriasis can present unique challenges, and we are committed to providing you with the tools and resources to navigate this journey effectively. That's why we are excited to introduce the Psorphil Patient App! This innovative app is designed with your needs in mind, offering valuable information, personalized guidance, and a supportive community right at your fingertips. Whether you're seeking treatment advice, connecting with fellow warriors, or simply staying informed about the latest developments in psoriasis management, the Psorphil Patient App is your trusted companion. It's a game-changer, and it's launching soon!
Free World Psoriasis Day 2023 Shirts for Earlycomers: To celebrate World Psoriasis Day 2023, we are giving back to our incredible community. Earlycomers to the festivities will receive a free World Psoriasis Day 2023 shirt! These shirts are not only a symbol of unity but also a stylish way to show your support for the cause. Wear it with pride during our WPD celebration, and together, we'll raise awareness, fight stigmas, and strengthen our bonds as a community.
Save the Date for World Psoriasis Day 2023: October 29th, 2023
Venue: San Andres Sports Complex, Manila.
Join us for a day filled with hope, support, and celebrating our collective strength in the face of psoriasis. It's an event you won't want to miss!
Stay tuned for more details on accessing the Psorphil Patient App and securing your free World Psoriasis Day 2023 shirt. We can't wait to embark on this journey with you and make World Psoriasis Day 2023 unforgettable!
Let's come together and make World Psoriasis Day 2023 a resounding success!
#WPD2023 #StrongerTogether #AccessForAll
by Josef De Guzman
Psoriasis Philippines (PsorPhil) is a patient support group for Filipinos with psoriatic disease. A few patents formed Psorphil as an online community where they can freely articulate themselves and discuss their conditions.
The Psorphil-GPP CARE Project is conceived to take better care of members with the GPP type of psoriatic disease through several projects such as a patient-powered registry, GPP support group, patient rescue activities, networking to hospitals, and different trial sites.
We had a round table discussion yesterday on how to improve healthcare for psoriatic disease. With all the recommendations, we hope that biological treatments will be included in the Philippine National Drug Formulary and PhilHealth will create a benefit package for psoriatic disease.
#psoriasis #psoriaticarthritis #UHC